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Kids Kidney Research

Kids Kidney Research

Personal Stories

"There is no cure for kidney disease. We need to understand why kidney and urinary tract diseases occur in children. And we need to improve the diagnosis and treatment of these, sometimes life-threatening, conditions."

Professor Adrian Woolf, Insititute of Child Health, Great Ormond Street Hospital

 

What is kidney disease?  How does it affect you on a daily basis?  What is it like for a child living with a chronic kidney condition?

Here, we try to answer some of these questions.  These are a selection of personal stories and experiences of specific kidney conditions, written by the parents of the child concerned, rather than a doctor.   Each article also includes a selection of links to websites that can give medical information on the respective conditions.

Keep checking back, as we add to the selection of stories and conditions covered.

Clearly, no two people will experience a disease in exactly the same way: however we hope that these stories will give you an insight into the realities of kidney disease

 

 

 
Nephrotic Syndrome - Louis' Story
Louis is now just about to be 7.
He's razor sharp, hilarious and full of life...  More>>
 
Living with Juvenile Nephronophthisis
Lucy was a happy baby, although noticeably slow in her physical development...  More>>
 
Vesicoureteric Reflux - Tom's Story
A routine blood pressure test leads to a diagnosis of vesicoureteric reflux....  More>>
 
Chronic Renal Failure - Jasmine Stalker-Firth
Jasmine was born on 11 February 2008 and she has chronic renal failure...  More>>
 
IgAN - This is Thomas' story
Brown wee. That's the first thing I noticed.  More>>
 

Charlotte and Aero
FSGS- Charlotte's Story
It all started in Sardinia...  More>>
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Formerly known as The Kidney Research Aid Fund
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